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PPPD Support Group

I feel alone in this! Am I the only one suffering from this? What is going on with me?  No one understand me.These are some of the questions that must be going in your head after receiving this diagnosis or still figuring out your diagnosis. You are not alone!

A short story about two of my clients Hannah and Charlene. Hannah developed PPPD after a BPPV episode and Charlene after a stressful period in her life which caused anxiety. They are on their road to recovery. But, In a week they both made the same comment, Priti we feel alone in this. We would like to meet more people with this diagnosis and create a support group. We would like to know how others have navigated through this.

This is how we decided to begin the process of starting this support group. If you are someone with this diagnosis or think you may have this condition, feel free to join us.

What is PPPD ? PPPD is an unseen condition. It is a persistent feeling of dizziness.

If your dizziness has lasted more than 3 months and you feel it for most of the day than you may have PPPD. Persistent Postural Perceptual Dizziness is what the medical term for it as described in Baranys society’s 2017 diagnostic criteria. What can trigger PPPD:

  1. An episode of BPPV

  2. An episode/s of anxiety or panic attacks or stressful periods of life

  3. Episodes of migraines or vestibular migraines

  4. Episode of vestibular neuritis or labyrinthitis

  5. History of head traumas/concussion

You may have any of these or a mixture of few diagnoses. Your brain goes in to a mal-adpative pattern after these episodes. Treatment includes correct diagnosis, vestibular therapy, psychotherapy and may need pharmacotherapy in some cases.  Watch this short video by Balance and Dizziness Canada on PPPD.

As we all know, PPPD is an unseen condition. It is a persistent feeling of dizziness. So If your dizziness has lasted more than 3 months and you feel it for most of the days than you may have PPPD and no you are not alone.

Mission

Our mission is to support individuals affected by Persistent Postural‑Perceptual Dizziness by providing education, peer support, and guidance on effective management strategies. We aim to foster resilience, reduce isolation, and empower members with practical tools—including vestibular rehabilitation principles, lifestyle strategies, and mental health support—to help them regain confidence in movement, daily activities, and participation in life.

Vision

To create a compassionate and empowering community where individuals living with Persistent Postural‑Perceptual Dizziness feel supported, understood, and confident in their recovery journey, with access to education, evidence-based resources, and peer connection that improve quality of life.

Core Objectives

1. Education Provide reliable information about PPPD, recovery pathways, and evidence-based treatments including vestibular rehabilitation.

2. Community Support Create a safe environment where individuals can share experiences, challenges, and successes.

3. Empowerment
Equip members with coping strategies and self-management tools to improve daily functioning.

4. Collaboration Connect members with healthcare professionals specializing in vestibular disorders.

5. Awareness Increase public and healthcare awareness about PPPD to reduce stigma and improve early diagnosis.

  • This support group is intended for educational purposes and to allow participants to share personal experiences. The information shared during sessions does not constitute medical advice. Participants should consult their healthcare provider for individual medical concerns or treatment decisions.

    By registering for this group, you acknowledge that confidentiality cannot be fully guaranteed. Participants are expected to respect the privacy of others and not share personal information outside the group; however, Dizziness & Balance Clinic and its facilitators are not responsible if confidentiality is breached.

    Confidentiality may be limited if a participant expresses intent to harm themselves or others, in which case appropriate authorities may be notified as required. Audio or video recording of sessions is not permitted.

Join the support group by filling this form